What is Goldenhar Syndrome?
Goldenhar Syndrome is a congenital birth defect which involves deformities of the face. It usually affects one side of the face only. Characteristics include:
Goldenhar is also known as Oculoauricular Dysplasia or OAV.
Why did this happen?
Doctors are uncertain why Goldenhar occurs. However, they do not believe it is the result of anything the mother did while she was pregnant. Environmental factors may play a part and there does seem to be an increased incidence of Goldenhar among the children of Gulf War Veterans.
Will this happen to children I have in the future?
The chances of having another child with Goldenhar is less than 1% or less. Your child has about a 3% chance of passing it on to his or her children.
What kinds of problems could my child have?
In addition to the physical characteristics common to Goldenhar, your child may have the following problems:
Will my child need surgery?
Depending on the severity of Goldenhar Syndrome, your child may have some or all of the following surgeries:
Am I alone?
No! There are many families and organizations who will be glad to talk with you and help you with information and support. Don’t forget books, videos, and websites. The listing below will get you started.